EVERY LIFE MATTERS

OUR MISSION

The Foundation was formed in memory of the founder and director's daughter, who passed away from Trisomy 18 in January 2015. 

Out of the ashes, beauty was born with the formation of Everly’s Angels Foundation, an official non-profit with a 501 © 3 status.  The charity is comprised of an all-volunteer staff and board who were touched by Everly’s short but impactful life.  The foundation provides encouragement and support to special needs families, parents who receive a devastating pre- or post-natal diagnosis and families who have experienced child loss.   The Foundation, inspired by the director's daughter, Everly, desires to encourage others to live with intention and purpose, despite a diagnosis, ailment or circumstance, and to make the most of every day.

Taking cues from Everly who was always sporting a smile and in good spirits, the foundation also desires to encourage others to live with intention and purpose, despite a diagnosis, ailment or circumstance, and to make the most of every day. 

Everly’s Angels Foundation celebrates every life because we know that every life does matter.  Babies who don’t take a single breath outside the womb, babies who are labeled “incompatible with life”, and children and adults with varying degrees of special or unique abilities.  They ALL matter.

TRISOMY 18 AWARENESS

Our beloved Everly sporting her Trisomy 18 Awareness ribbon and headband that was created and lovingly by a fellow Trisomy family. 

 

What exactly is Trisomy 18?

Trisomy 18 is a rare, life-limiting genetic condition that occurs when there is an extra 18th chromosome present. 

  • Occurs in 1 out of every 6000 live births
  • Sadly, 50% of babies carried to term will make it through birth. 
  • Only 10% live to their 1st birthday
  • There are less than 200 children with Trisomy 18 over the age of a year in the United States.

How does Trisomy 18 impact a baby?

  • The extra 18th chromosome affects each child differently.
  • Predisposition to birth defects of varying complexities including: 

o   Joint contractures

o   Spina bifida

o   Hearing loss

  • Most common & significant are heart defects, 90% have some type
  • Severe medical issues including:

o   Feeding difficulties

o   Gastroesphageal reflux

o   Slow pre/postnatal growth

o   Apnea

o   Seizures

o   Kidney defects

o   Urinary tract infections

o   Developmental delays

o   Scoliosis

  • Increased mortality rates due to combination of factors central apnea, aspiration pneumonia & illnesses which are difficult for babies with Trisomy 18 to overcome.

For more information on Trisomy 18, please visit www.trisomy.org.


Our Mission

 

Everly’s Angels Foundation is a 501(c)3 non-profit charity striving to provide encouragement and support to special needs families, parents who receive a devastating prenatal diagnosis and families who have experienced baby/infant/child loss.  The Foundation was formed in memory/honor of the principal director's daughter, who passed away from Trisomy 18 in January 2015.  The Foundation, inspired by the director's daughter, Everly, desires to encourage others to live with intention and purpose, despite a diagnosis, ailment or circumstance, and to make the most of every day.

 

                                                                                 

                                                                                 

Our sweet Everly Marie, our reason for Everly's Angels.

 

For you created my inmost being; you knit me together in my mother’s womb.
— Psalm 139:13

Everly’s Angels Foundation, Inc. is a registered foundation with the State of Florida.  “A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE (800-435-7352) WITHIN THE STATE.  REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE”  REGISTRATION #:CH44811